I find my thoughts on Mom a lot
lately. Maybe it’s because it was about
this time of year – the spring of 2001 – that she died. She began sharing she was feeling
sick just before Thanksgiving, just a few months prior, and her family doc began to think there was something really wrong. That’s
when we began that terrible, but all too short road to her death in that spring. She was so weak that autumn, too weak to rake the leaves in her huge yard that bordered a woods and a forested park, so we kids came down to do it for her. I remember her watching from
the window as my sister Kathy and her husband, Jay, my brother, Terry, and I, and some of my young nephews, too, raked a ton of
leaves. We were all laughing and joking,
and she was smiling, with tears, to see us all together. I felt if we all stayed together, we could
face anything, so strong was the feeling of love and bonding.
Later, I
remember sitting with her in the pulmonologist’s office, after being dragged
hither and yon through the hospital, getting x-rays, blood tests, this scan and
that. Because I am a nurse, Mom always looked to me to make
things better, easier, and I never could. I felt the weight of that, even if it might of been self-imposed. I felt the hospital staff
always treated her poorly, never did the little things to make it
easier for her, and nothing I could do really helped. Still she always looked
to me to make some difference. It was
always some sort of crappy rule or bureaucracy that made things difficult, or
some small tenderness that was withheld that could have made things so much easier, and it was
the withholding what upset me the most.
I hoped I never practiced my job like that for people in need, I was sure I usually didn't, and it drove me
nuts when I thought they treated her like she was just some job, just one more patient to finish before they could go home for the day. Couldn’t they see that my mother was IMPORTANT?
Anyway, they kept talking about this “spot” on her lung, blah, blah, blah, and
I could see she didn’t understand. We were finally in the pulmonologist's office (lung doctor) when I couldn't take it any more. I felt, for goodness sake, TALK TO HER! Yet I managed to
politely interrupt and said, “Excuse me, I don’t think this has been made
clear to my mother. By ‘spot’, we are saying
‘malignancy’, aren't we?”
The man looked at us over his
glasses and says “Oh, yes, of course.”
Mom looks at me with a questioning, almost panicked look, and I say
gently, “Mom, ‘malignancy’ means ‘cancer’.”
“Oh,” she says, and while the doctor is shuffling papers in
embarrassment, or annoyance, I don’t know which, she begins to cry, and he
stands up and leaves. I move next to her and rub her shoulders,
hold her hand, and typically, in her fashion, she gathers herself together,
wipes her eyes, and she says, “Well, I beat it once, maybe I can again.” I, myself, am feeling a bit shaky, but agree.
“You bet,” softly, hoarsely. Fifteen years before she'd had a melanoma. Turned out later this was a new cancer, not related to that one. Talk about the luck of the Irish, she sure had it! Or didn't.
In
truth, she really only ever was well enough to get one chemo treatment. I don’t want to talk about the complications,
what I feel was the doctors' mistreatment of her, time after time, their
blindness to her mental state, their refusal to hear me, and her oncologist’s
boorish behavior right up to the end.
No. What I was crying about in the car this
morning was my regret about our relationship.
I so wanted to be close to her.
Once, before she was staying with me, I drove down after work one night
to visit. She was sitting on the couch
watching TV. Her back used to hurt quite
a bit, then, and sometimes I’d rub it a little as she sat there. That night she said, “Feel this,” and there
was a mass on her lower back about the size of a large softball,
protruding from under the subcutaneous tissue.
We both knew this was not good, but we said little. It was painful, so I gently massaged there
for a long time. She said – “OK, that’s
enough, it’s a little better, and that must be exhausting.” I said that if more massaging would help, I
was not tired, and she let me continue.
I kept
at it until my arm was nearly dead, because it was a rare time she would ever
let me be that close to her. All I
wanted was for the two of us to sit and hold each other, be close, and talk in
the little time we had left together before she was gone. Is that abnormal? She’s my Mom, and I wanted to be held like
her child again, even though, at the time, I was nearly 50.
It would be all I would have for so many years. I just wanted to be close to her.
The Bible
records that God wanted to draw the Israelites to Himself like a hen draws in
her chicks, “but they would not”, and my mother also “would not”. She never wanted to be held, or to hold me, never
wanted to be close. She would, when my
sister or I were leaving to go home, take a brief, loose hug and a quick, “I
love you,” but nothing like what I was needing, wanting from her. What was it that was so hard to give? And she never let me in to talk about what
was inside her, her thoughts, though I tried to let
everything that was in me ‘hang out,’ full disclosure, so that she would know
it was safe to do the same.
Once,
she spoke to me with some of her guard down, but it took delirium from
medication. She rang me once in the
middle of the night, when she was living with me, using a call bell system I
arranged with a wireless doorbell.
Medication had made her disoriented and confused. She sing-songed about ‘little angels’ she’d
seen in the air, and said there’d been dead animals in her bed (a farm pattern
on her sheets). As we talked she became
aware of who I was. She said she ‘didn’t
know how God could ever love her. She’d
been so desperately wicked. ‘ As she
rambled on, she stayed fixated on her wickedness, confessing to me her sins,
none of which were very surprising to me, as I’d lived with her for years! But I was so moved with compassion and love
for her. We all shared her wickedness, I
told her, but as I cried with her, no deep theological wisdom came to mind, nor
was wanted. I just tried to tell her how
we had all done things we regretted, were ashamed of, how much God loved her,
how great His mercy, how much Jesus loved her to die for her, to pay for her
sin on the cross. I prayed and prayed,
and unknown to me, Christine in the living room could hear our conversation,
and was praying as well. Before long,
she calmed, crawled over the bed to the top of the sheets on all fours like a
child, and got into bed. I covered her,
but the moment was over. She wanted no
tenderness from me. But she did say,
“Good night, honey.” We take what we can
get!
Whenever
she would catch me looking at her with any sort of tenderness, she’d give me a
cross ‘What are you looking at?’ After a
couple of those, I was careful to avoid a tender look, or to think too much of
my love for her, or my impending loss, lest any thought should show in my face. Maybe that’s why I still grieve, I don’t
know.
Once, in the hospital, we were
dealing with one of those annoying radiographic experiences. She needed a CT scan, and for the contrast
drink they gave her banana-flavored drink.
Now, I know they try to palm that off all the time, because no one likes
it – but Mom DETESTS banana-flavored stuff.
I asked for something different.
“Oh,” the young ditz-brain said, “This is already mixed up, and I’m not
sure we have another flavor…” I’m
thinking, bull!! but Mom, of course, does not want to make trouble and will not
allow me to push the issue. She actually
gags as she finally gets it down. The test takes hours and hours. Mom is sitting in a hard and uncomfortable
wheelchair. They say she can eat
whatever she wants now, but all they have is some dry saltines. Mom is hungry, she eats them. Wonderful! Dry saltines and banana contrast
dye! I go to the cafeteria and get her a
GREAT hamburger. God
is good. I have had hamburgers
before and since at that hospital, but none have EVER been as good as that day,
and though Mom has not been eating well in weeks, she eats the whole thing and
LOVES it. Her back hurts, and I have her
stand with her arms around my neck (we are in the back hall of x-ray), which
she actually does, as she can’t stand unassisted, and I rub her back. The x-ray tech straightens the blankets on
her wheelchair while she’s standing, and when she sits down she looks happy and
relaxed. I feel happier, too.
My mom
had a good hamburger. She got her back
rubbed. And I got to hold her close for
just a little while. And I will remember
it the rest of my life.